BLOG 53

05 December 2014

Just a general update after a crazy past 7 days and a doctors visit on Tuesday (02 Dec/14), this week.

My transplant doctor agreed with me that my escalating (out of control) bone pain was a crisis and we needed to manage it properly with strong morphine medications. Previously, I've been on low doses. I was given some higher doses and we had a plan to check my pain levels twice weekly + the virus.

Plan B was if these stronger oral meds didn't work: we start knocking on the door of the palliative pain care team. Even though, we are not planning on me dying - they are the best at what they do and can manage the most extreme malignancy pain - even if I have to get a pain pump inserted under my skin. After trying these new meds on Tuesday night, having an escalating fever (38.2C) and not getting any response at all, except with Nurofen/being on 6 medications, I told my doctor (via phone) on Wednesday morning of my previous bad night + a new sore throat.

Doctor arranged on 3rd December for me to go into hospital for at least a few nights to sort out my pain, virus, fever, etc. Apparently, the MDS (Myelodysplasia) can cause fevers on it's own. After another night in pain, we tried an inter muscular injection to stop my bone marrow inflaming cramping and spasming my muscles around them: https://en.m.wikipedia.org/wiki/Ketorolac/ - no Valium needed, 30ml of this is enough (so far/so good - it's been over 24 hours).

We are hoping this will cover me until my steroids kick in to reduce inflammation in my marrow. I am now able to rest properly. I'm thanking God this morning for a good night sleep with no pain and none this morning, as I wake. I'm hoping all I needed was one muscular injection to stop the cramping cycle, via my bone marrow. However, we'll be watching for any pain return and stepping on it's tail, if the need arises. Keep watching my page for my journey news.

Thank you for reading,
Much Love,
Jodie & The Guerrero Family xx