BLOG 18
5 June 2009
Greg and kids are getting over cold's/cough's etc, and other than minor ailments are happy. loving and supportive of all of mummy's treatment. Alot of people ask me, 'How is Greg? How is he coping?'--Greg is like a rock and I believe it's because of our strong faith in God, as a family and some of his experiences growing up that have prepared him for these difficult times.
He is a regular, quiet guy with lots of love and tenderness, but knows when to trust God and always leads us. We are so blessed to have him, in our lives. Our kids are little characters and both are so, so loved and fill our hearts and home with joy. I am very actively blogging at the moment to keep every one up to date on all that is going on. 02nd June (Tuesday) I went to see the Heamotology Registrar (my clinical consultant is in Belgium on a conference) to be checked after leaving hospital and be given some MRI results.
The virus has not completely left and so I am back on the anti-biotic's and here's hoping another dose will get rid of what is still hanging on. Wearing a mask in public and washing our hands alot at home and whilst out is my best defence in keeping away the bugs from what is left of my immune system. THE MRI RESULTS, were presented before a panel of doctors (in a clinical setting) and the most recent MRI pictures are compared with the last MRI showing a diseased S1 section of sciatic nerve.
Although the doctors have difficulty discerning what is disease and what is scar tissue: The combined opinion is there is a small amount of change in the structure of what was orginally seen on the MRI. The opinion is that I am STABLE, rather than in partial or complete remission. Although when my heamotology consultant returns, we will get her opinion and try and get a better idea of what I going on.
Until then, we will thank God that STABLE is good and although I still have damage and some leg residual R leg weakness, I am alive and it looks like we have found a drug that will control the disease should it try to return. My blood counts are up & down, due to the past chemo and the virus, but I am in the hospital for a check up every 2-3 days, so I am being well looked after.
Last weekend (May 29/30/31), Julia and I went to a christian womens conference,we both enjoyed it, as a great respite away from hospital's, etc. I was able to speak to many women, facing similar challenges.
Love & Blessings, Jodster.